Wednesday, February 6, 2013

Days Pass Me By- a poem

Days pass me by
Whereas nights seem to last so long
I'm a little nocturnal Seizin gal
By day I'm a fatigued, no energy, lifeless me
I know this isn't the way things were meant to be.
I try to be upbeat
But when everything surrounding me cant support my decisions, or when doctors let you down
You feel defeated.
So days pass me by....Life is short and I feel as if I'm losing time... As I sit by and wait for something better to come my way.
I can no longer live this way, things must change.

©H.Reese2013



Tuesday, February 5, 2013

Dumb shit doc

So I'm uber pissed today bc my dr doesn't hear me. I'm not much better, yes I'm not having 20 seizures a day but what you don't understand is any seizure is bad. Even if is just one or two I am not supposed to be having any! My meds are not controlling my seizures and I'm on a shitload of medicine!
I want the option of another opinion but he keeps shooting me down. I feel like this isn't going anywhere, that this isn't getting any better. I'm optimistic, but he keeps bringing me further and further down.
Treatment plans started out to be amazing now I'm being told there isn't anything right now.
I feel so defeated. I cannot live this way I refuse to!
This isn't how my life was mapped out for me. I'm too outgoing, too smart, and have way too much potential then to just sit and rot. And that's how I feel I've been living. No more! I'm sick an tired, I may not be able to change certain things but I can damn sure change myself. And that's exactly what I plan on doing. I'm tired of being told,"I can't", when I hear myself say"how can I".
I am so mad but I'm determined. I'm fighting and in the end I will win!
Cause that's how I shake, rattle and roll:)
Much Love
Holley