Best men, best friends. ..I have been blessed

Sacred

There's this place

Where time no longer exists

A place colorful and bright..

Own it.

There is no darkness here.

No worries, no fears, no troubles, no strifes.

This simply is the life.

Choose it.

The music played is simple, 

they call it laughter,

They call it love.

Accept it.

Tranquility enters, you hope it never leaves.

Every good has a bad...

But you have a choice- take that good everywhere you go.

Make it your daily prayer.

Serentity

Once found, you're so light you feel as if you could just float.

I imagine myself, ethereal, 

Flowing

Glowing,

Even growing...

I soar so high with so much love inside.

I am happy and I am free.

I am me.

I am within my soul.

Free

Find the good in every bad..

Only you can make that choice-

 take that good everywhere you go.

Keep positivity always, never let it go

Set negativity free

Treasure...

Love thyself

Treasure who you are

Take a journey inside

See the beauty in you 

Beautiful we all can be, use your key and step inside.. 

Let the love reside

It's Sacred

Unity, becoming one with you and your soul

Behold your beauty, love your uniqueness.

Embrace it

Find the treasure that lies within you.

Be open to it.

Set your self free, find your happy.

Sacred.

H.Reese

©2014

Introduction

Hi, my name is Holley and meet my sweet seizure doggie, AnnaBelle! This is my first blog, It has taken me a while to figure out how to set this blogger thing up so I have some entries ready to be put in here, that I've already written.
I will either write about living with epilepsy, share some poetry, or just talk about what's going on in my shaky lil life:)
Holley

May 2, 2014

Sooo

I have really slacked here..

It happens. I highly doubt I can say everything that has happened since my last entry. Because so much has happened.. My brother is not doing much better but he is my hero.

Hugh is my hero because I've never seen someone with a passion, a love for life, most if all a love so big ... It's bigger than anything you could ever imagine- the love for his children and his wife because if they were not a part if his life, he would have threw in the cards a long time ago. But for 8 years we've seen miracles from a boy who we never thought we would ever seen one from. His will, determination, fight, and hard headed attitude has kept him going! That and he's so active! The second time he was diagnosed he called to tell me and was building a deck while still changing tires in big rigs- mind you he had tumors all in his GI tract! Now with it being spread and matastisized he recently built a garage. However, due to intense pain he has been slowed down

When he was told there were no more options, he found options by going to Cancer Treatment Centers of America, then came back down here and started a new treatment plan with the doc down here along with going on a special diet eating foods that kill cancer cells. He is so amazing! And guess what? He's my big brother! I'm so blessed!

My shakes are not quite as bad as they were when they first came back. I am not where I want to be health wise and I know I can be so much healthier if I could just light a damn match under my doctors buttocks!

My VNS battery needs to be replaced, meds need changing bc I'm losing my hair! And he increased the drug he put me on for migraines (it is also an anti epilepsy drug) but it hasn't helped my migraines. In fact they are worse, and when I told him about my hair he said take vitamins, it was the drug. What he failed to mention is that the other medication I am on that is for epilepsy has same side effect: hair loss!!!

So now I have a spot where my hair is extremely thin!

I mean crazy! In high school my hair was so thick, I shaved underneath to thin it out! (That and all my friends did it and Clo was itchin to shave it! Haha) my mom still doesn't know about that- guess she will when or if she reads this. I highly doubt it. Haha!

So imagine having hair so thick and hating it to looking in the mirror with tears in your eyes wishing you never said you hated it, and what you'd give to have it back! Fro-ness, frizz and all!

I'm ready for CBD oil.. The natural way... I'm sick of putting all these toxins in my body! I would love to see all natural medical treatments.. I know it isn't all possible but for the most part it is... They just won't tell you because of pharmacutical companies and the govt- a severely f'ed up system! F'ing with the lives if people! 

P

AnnaBelle my little service dog is about to have her 2nd birthday!🐶

I just don't know what I'd do without my little lifesaver! She brings me so much joy! Tonight she climbed in lap and sat up to put her head on my shoulder, I gave her a hug and she just kinda scooted around to get comfy. This made me laugh bc it was too cute, but then she just fell asleep right there nestled on my chest.... And then I melted! She melts my heart, I never had a dog of my own but for my first dog... Man I really won the jackpot! So happy birthday my sweet AnnaBelle, my little lifesaver.. In too many ways to count! I love you so much and I vow to be the best human momma ever!

I am getting sleepy, even though I have much more to update you on. Such as:

-purple day2014

- proclamation!!

- nominated for Purple Day Ambassador

-elected Purple Day Ambassador for Mobile,Al

-book update

-art contest for epilepsy foundation

- and so much more!

Going to see my Daddy tomorrow so will tell you all about that too!

G'night and God Bless

Holley

Never

       

I never knew I'd ever feel a love that was true...

To me.

I never expected my best friends to go away...

Never.

I never knew an aching heart could go on for so long..

Never.

I was taught to love with everything that you've got..

I do.

I never thought I'd go blind by love..

I did.

And I sure didn't think I'd be left behind...

Wondering why

Why, give and give all my love 

When love keeps walking away

Why can't I see the hurt before I give my heart away

I never thought the love I gave, the friendship I had would ever be accompanied with shame..

It was.

In all of the pain life has thrown my way, none could be any greater than that.

After all the hurt I've endured somehow I still care..

about you. (Why?)

Because you will continue to disregard 

Life isn't a game, and I will not be played.

H.Reese©2014

Update

Short and simple

Hugh, my brother- his treatment did not take. Infact his cancer has spread and is very aggressive.

Surgery would do more harm than good

He made his doctor put him back on the drug he started out on at a very high dose, right now he is extremely sick due to side effects.

But due to the fact that he is such a fighter, I have hope.

That is all.

Please pray, thanks

Holley

November is the month, purple is the color.

Two different causes, same month, same ribbon color, shared by brother and sister.

For some time now I've been raising awareness for my own affliction, Epilepsy. Recently my family received news that the new treatment the doctors put my brother on, didn't work. Every side effect listed on that little pamphlet you are given at the pharmacy, or maybe it comes with your medicine bottle, well my brother got all of them, awful! But what you may not know about my brother is I think my mother slipped that boy some kryptonite in his baby bottle, he is tough stuff!!!

 So they told him they could not do another round of treatment following this 2nd one he was abt to start. (Too dangerous- drug was very toxic) 

So, if this round of treatment doesn't work.... It has to work there is just no other way. God has my big brother in his hands, and my trust is in God!

Back to my point, y'all know I digress big time. Ok so I'm online looking up stuff for epilepsy awareness... When I stumble upon the first picture below.*

I looked at my sister and said,"Katie, your  never gonna believe this shit but guess what?"

She was half asleep ( whoopsie)," this better be good"

"ok, how about GIST Awareness month is in November"

"Good stuff." - lil miss sarcasm

But thats not all nugget (nickname)...their color is purple!!!! 

"Oh cool" (sincere..haha)

Now tell me that just don't blow your skirt up! Haha I know y'all are jumping up and down doing cartwheels and busting out with some sweet snoopy moves! Bahahaha!

My thought, as she zonked back out, was...how cool is it that I get to share that this with him? Even though I know without a doubt he won't give two shits about it, I do and it's kinda like my private little bond. Although I did tell him. I didn't have to say much just that I came across it and told him the month and color and smiled he gave me his crooked smile. And the man if many words said, ain't that some shit bet that tinkled you pink. No, I would rather share good health so no... But I will raise awareness for this rare cancer that needs more treatments and needs to be brought to attention so people are t misdiagnosed, and so it will be better funded by hospitals.

And in memory of my dear friend,Kat, who had epilepsy and GIST, I can now be an advocate for both who are in desperate need of awareness.

GI Stromal (GIST) is a rare form of cancer, this article can tell you more of what it is, and the second section tells a bit more about my brother who is in this unfortunate category.;

SECTION 1:

Gastrointestinal stromal tumor (GIST) is a rare cancer affecting the digestive tract or nearby structures within the abdomen. GI stromal tumor, or GIST cancer, is a sarcoma. Sarcomas are cancers that grow from cells of the body’s connective or supportive tissues such as bone, cartilage, tendons, nerves, fat, muscle, synovial tissue (tissue around joints), or blood vessels. (Most cancers are carcinomas, not sarcomas.)

 

GIST cancers arise either from cells called Interstitial Cells of Cajal (ICCs) or from less differentiated stem cells or precursor cells that can develop into ICCs. The ICCs are known as “pacemaker cells of the gut” because they send signals to trigger peristalsis, the digestive tract’s muscular contractions that move food along its course. 

SECTION 2:

Cancer is most threatening when it metastasizes or spreads to additional locations beyond the primary tumor site. In GIST the most common sites for metastasis are the liver (<HUGH) and the abdominal membranes (peritoneum, mesentery, omentum). GIST rarely spreads to lymph nodes, but it may occasionally affect local abdominal lymph nodes. Unusual sites of metastasis include lung (<)and bone tissue and muscle tissue.

In conclusion, I need prayers for my brother more so now than ever. Also, I get to share my awareness month and color with my big brother! How neat-o is that?

I guess I better get more ribbon this year!!!!

If you want to help raise awareness too, all you have to do is post something on your Facebook page. I will post another post with links to pages where you can get some cool pictures with great info and please tell everyone to share.

I will be raising awareness not just for Epilepsy but for GIST as well. 

Thanks for reading! 

Please don't be afraid to leave a comment just to say hi or to give some feedback.

Much 💜 & May God bless you all!

Holley